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Research and Quality Improvement Council Comments on National Quality Forum draft Nursing Home Performance Measures — July 24, 2003

Research and Quality Improvement Council Comments on National Quality Forum draft Nursing Home Performance Measures — July 24, 2003

Research and Quality Improvement Council

July 24, 2003

Kenneth W. Kizer, M.D., M.P.H.
Chief Executive Officer
National Quality Forum
601 Thirteenth Street, NW
Washington, DC 20005-6708

Dear Dr. Kizer,

The Research and Quality Improvement Council of the National Quality Forum recently met by telephone conference call to discuss the draft Nursing Home Performance Measures. Approximately 25 members and organizations from the RQI Council took part in the discussions.

Council members noted greater clarity and exposition of this measure set and a continuing evolution in the presentation of the materials. Members are still concerned, however, that explicit documentation of the evidence to support the recommended measures remains less than robust. Concern persists that NQF is proposing national standards based on modest clinical evidence.

Other general comments included a perceived lack of consistency in the use of exclusions for the measures. For example, on Page A-1, there is a fairly lengthy list of exclusions for residents who need help with daily activities but no such exclusion list for residents who lose too much weight. It was not apparent why there was such a difference for these two measures. A general review of all the exclusions for consistency might be in order.

We had extensive discussion regarding the measure on weight loss. There was little support for this measure amongst participants on the call. Some commented that many patients are deliberately placed on weight reduction diets in the long-term care setting and they should be excluded. In addition, there was no exclusion for hospice patients. Finally, and most concerning, was the potential to create perverse incentives to insert feeding tubes in patients with advanced dementia or to force-feed patients with severe neurologic or dementing diseases. A recent article in JAMA demonstrated widespread variation in the use of feeding tubes in severe dementia and questioned the use of such technology. Inclusion of a measure that penalizes institutions for patients with weight loss might bring about greater use of feeding tubes, counter to evolving practice standards. Another participant noted the lack of measures dealing with oral health, which could directly affect the ability to maintain caloric intake.

Substantial discussion focused on staffing measures. While this was not considered a quality measure per se, there was concern that despite consumer appeal, measures pertaining to staffing may lack consumer value for decision making. Since there is no adjustment for patient acuity levels, the raw numbers of support staff may misrepresent appropriate workforce. Patients at minimal risk or with low acuity will require lower intensity supervision whereas facilities that have patients with advanced health care needs will require more personnel with greater skills. There was concern that institutions with strong staffing patterns may decide that they have overhired when compared to a generic national mean and might reduce its staff to the detriment of good patient care. Should these measures be used, a clear explanation of the limitations of these measures must accompany their dissemination.

RQI members also discussed the post-acute care pressure ulcer measure. While most on the call agreed that some measure pertaining to development of new pressure ulcers is useful for quality improvement and public information, the "failure to improve" aspects should be reconsidered and dropped. In particular, it was felt that the length of stay in the post-acute care settings is sufficiently short to limit noticeable improvement in existing pressure ulcers. To include failure to progress in a roll up measure of pressure ulcer care in the post-acute care setting would distort otherwise good care being rendered for patients with this condition. We strongly recommend elimination of the "failure to improve" aspect of this measure.

We also spent time discussing the pressure ulcer measure for the chronic care setting. The RQI Council supports exclusion of patients with pressure ulcers on admission to long-term care. While we were under the impression that this had been accomplished, examination of the specifications for the proposed measure indicates that all patients whose MDS data is derived from the initial intake were excluded from the pressure ulcer measure. Thus, all patients with a pressure ulcer 90 days into their stay will be included in the denominator. Patients transferred from hospital settings with Stage IV pressure ulcers will likely still have a lesion present 90 days after admission to a long-term care facility. RQI council participants felt that this could unfairly represent care rendered at that facility. Such measurement could produce perverse incentives for long-term care facilities to avoid patients with severe pressure ulcers.

The RQI Council recognized the amount of work that has gone into these measures and the difficulty to satisfy all stakeholders with this complex task. Nevertheless, we have made recommendations on four measures. We remain concerned about the potential utility of many of these measures as information for the general population. To make the data set meaningful and valid as both a quality improvement vehicle and an effective tool for patient selection of health care providers, clear public explanations as to the value and limitations of these measures in the context of diverse populations at different facilities are essential.

We thank you for your attention to these measures. The RQI Council would like to review a revised draft at a future date prior to the balloting.

Sincerely,

William Golden, M.D.
Professor of Medicine, UAMS
Past President, American Health Quality Assn
Chair, RQI Council

Deborah Nadzam, Ph.D., F.A.A.N.
Director, CCHS Quality Institute
The Cleveland Clinic Foundation
Vice Chair, RQI Council


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